Healthy Skepticism Library item: 5969
Warning: This library includes all items relevant to health product marketing that we are aware of regardless of quality. Often we do not agree with all or part of the contents.
 
Publication type: Journal Article
Marcus AD.
Patients with rare diseases work to jump-start research; advocacy groups create their own tissue banks to aid in drug treatment.
Wall St J (East Ed) 2006 Jul 11; :D1,:
Keywords:
Biological Specimen Banks/ethics
Biological Specimen Banks/organization & administration*
Biomedical Research*
Databases, Genetic*
Humans
Orphan Drug Production*
Patient Advocacy
Rare Diseases/genetics
Rare Diseases/therapy
Self-Help Groups*
United States