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Healthy Skepticism Library item: 19413

Warning: This library includes all items relevant to health product marketing that we are aware of regardless of quality. Often we do not agree with all or part of the contents.

 

Publication type: news

Edwards J
How Drug Companies Look at Your Private Medical Records Any Time They Want
BNet 2011 Mar 17
http://www.bnet.com/blog/drug-business/how-drug-companies-look-at-your-private-medical-records-any-time-they-want/7653


Full text:

It’s kinda-sorta common knowledge that pharmacies sell their prescription data to drug companies so companies can use it to inform their marketing. But a new lawsuit alleges that CVS sold its lists to Eli Lilly (LLY), Merck (MRK), AstraZeneca (AZN) and Bayer (BAYRY) “by name, date of birth and medications taken.” If true, that’s sobering in terms of patient privacy — do you really want Lilly knowing that you take Prozac? — and probably illegal under federal law.

The U.S. Supreme Court has agreed to decide whether prescription data mining can be banned by state law to protect patient privacy or whether the transmission of such information comes under the First Amendment’s free speech protections. The federal Health Insurance Portability and Accountability Act is supposed to limit the number of people who can read your medical records, and businesses are required to alert patients when their records are shipped to third parties. Two suits allege that CVS and Walgreens (WAG) may be violating that law.

One alleges that Walgreens failed to compensate patients for selling data that includes a patient’s sex, age, state, the doctor’s prescribing ID number, and the drug used. The other claims CVS had an “RxReview Program” which sold Rx data that drug companies used to target promotional mailings to doctors:

In the mailings funded by pharmaceutical manufacturers, Defendant CVS Caremark identified consumers by name, date of birth and medications taken by the consumer.

Such a program would be in contravention of CVS’s publicly stated privacy policies:

CVS/pharmacy wants you to know that nothing is more central to our operations than maintaining the privacy of your health information.

CVS CEO Thomas Ryan once allegedly boasted:

We get the consumer. We have more information on the consumer and their behavior than anybody else, and we share it with our over-the-counter suppliers. We share it with our pharmacy suppliers. So we know how the consumer works.

But it’s not clear whether CVS still sells such information. Drug reps believe the company stopped doing so and IMS Health, a market research company that collects pharmaceutical data, is suing CVS to fulfill the unspecified terms of a drug data contract the two companies have.

Of course, CVS has a lousy history when it comes to patient data. In 2009 it paid the FTC a $2.25 million fine for improperly disposing of patient data in a Dumpster.

 

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Far too large a section of the treatment of disease is to-day controlled by the big manufacturing pharmacists, who have enslaved us in a plausible pseudo-science...
The blind faith which some men have in medicines illustrates too often the greatest of all human capacities - the capacity for self deception...
Some one will say, Is this all your science has to tell us? Is this the outcome of decades of good clinical work, of patient study of the disease, of anxious trial in such good faith of so many drugs? Give us back the childlike trust of the fathers in antimony and in the lancet rather than this cold nihilism. Not at all! Let us accept the truth, however unpleasant it may be, and with the death rate staring us in the face, let us not be deceived with vain fancies...
we need a stern, iconoclastic spirit which leads, not to nihilism, but to an active skepticism - not the passive skepticism, born of despair, but the active skepticism born of a knowledge that recognizes its limitations and knows full well that only in this attitude of mind can true progress be made.
- William Osler 1909