Healthy Skepticism Library item: 1368

Warning: This library includes all items relevant to health product marketing that we are aware of regardless of quality. Often we do not agree with all or part of the contents.

Publication type: news

Fierstien H.
The Culture of Disease
The New York Times 2003 Jul 31
http://www.nytimes.com/2003/07/31/opinion/the-culture-of-disease.html?sec=health

Full text:

There are too many positive gay role models. In fighting the AIDS crisis over the last 20 years, we have done everything possible to dispel the negative connotations that come with having H.I.V. After all, it’s been our brothers and sisters, our boyfriends and girlfriends, and ourselves who have been discriminated against because of a virus.

So we produced advertising, created enlightenment programs, spent endless hours making certain that having AIDS or being H.I.V. positive was nothing to be ashamed of. We did a great job. Maybe too great a job. After all the effort exerted to convince the world that AIDS is not a gay disease, we now have a generation embracing AIDS as its gay birthright.

According to figures just released by the Centers for Disease Control, the number of new AIDS cases rose last year for the first time in a decade. Four Americans now become infected with the disease every hour. Many of our young men see infection as a right of passage, an inevitable coming of age. I hear of them seeking the disease as entree into the cool, queer inner circle that being negative denies them.

In our effort to remove the stigma of having AIDS, have we created a culture of disease? We all see the ads for H.I.V. drugs. They illustrate hot muscular men living life to the fullest thanks to modern science. Other ads show couples holding hands, sending the message that the road to true love and happiness is being H.I.V. positive.

Is that message: You’re going to be O.K.? (Which is terrific.) Or is it: You want to be special? Get AIDS. H.I.V. equals popularity and acceptance. (Which would be tragic.)

My heart goes out to all who have the infection. But while I pledge my energies and resources to the fight for a cure, quality care and justice, I still think we need to examine what we’re teaching our gay, lesbian, transgender, bisexual and straight youth. In my opinion, the messages the drug companies are spreading are lies. The truth is that AIDS is not fun. It’s not sexy or manageable. AIDS is a debilitating, deforming, terminal and incurable disease. H.I.V. drugs can bring on heart, kidney and liver disease, as well as a host of daily discomforts.

Unlike the photos in the ads we see, most of my friends who are on drug cocktails are not having the time of their lives. They spend mornings in the bathroom throwing up or suffering from diarrhea. They spend afternoons at doctor’s appointments, clinics and pharmacies. And they spend endless evenings planning their estates and trying to make ends meet because they are not well enough to support themselves and their new drug habit. And those are just the friends for whom the drugs work. For many women the cocktails are nothing but a drain on finance, internal organs and stamina.

Even if the drugs were as effective as advertised, should we be creating a community of drug dependency? We have done a terrific job removing the stigma of having AIDS. But in doing so we’ve failed to eliminate the disease. H.I.V. is an almost completely avoidable infection. You need to be compliant in some very specific behaviors to be at risk. In fact, if every person now infected vowed that the disease ended with him, we could wipe out the ballooning number of new infections.

Instead, we’ve sold our next generation into drug slavery and their destiny to medical researchers because we’d rather treat each other as sexual objects than as family. Thanks to the drug companies that have made billions of dollars off us, and to the medical community that has gained a captive audience to fill appointment books, and to AIDS charities that have become a career for many, we have created an industry of disease that would crumble if AIDS was cured in our community.

I am calling for us to take back our lives and culture and to stop spreading the virus. I am calling for us to resist the normalization of disease and once again embrace health. I’m calling for an end to the false advertising for drugs and for us to stop minimizing the infection with cute little names like “the gift” or “the bug.” I want to see an ad campaign showing a sexy man saying: I don’t have H.I.V. I don’t want to waste my life and resources on drugs. I am taking charge of my body, my health and my destiny. I am a negative gay role model.